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[jerry]

very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.

[/highlight]

Stop, we need to talk, but not now as I need to go to bed...   aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?

PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number.....

Cheers Vamps,
Weve had-are continuing to have to a degree!- a struggle to get him diagnosed with aspergers and over the past year or so Ive done a fair amount of research into it as well as having attended one of the "Early Bird " courses run by the National Autistic Society which was very good. To me, aspergers isnt about learning issues as much as social ones and obviously the scale of AS or Autism as a spectrum is vast. Our current concerns over his leg/foot are a seperate issue, being "physical" rather han "mental" though its cause is neurological. Will PM you later

PS , Lazy docker, thanks for your support too and help all goes well-and quickly!-for you !

[Lazydocker]

very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.

[/highlight]

Stop, we need to talk, but not now as I need to go to bed...   aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?

PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number.....

Cheers Vamps,
Weve had-are continuing to have to a degree!- a struggle to get him diagnosed with aspergers and over the past year or so Ive done a fair amount of research into it as well as having attended one of the "Early Bird " courses run by the National Autistic Society which was very good. To me, aspergers isnt about learning issues as much as social ones and obviously the scale of AS or Autism as a spectrum is vast. Our current concerns over his leg/foot are a seperate issue, being "physical" rather han "mental" though its cause is neurological. Will PM you later

PS , Lazy docker, thanks for your support too and help all goes well-and quickly!-for you !

ISTR my mum had the same issues... Took about 16 months IIRC

But, once done, she has had some pretty helpful support, both financially and with his educational needs

Oh... And thanks for the kind wishes

[Jimbob]

very true vamps-the two are seperate issues, though such so called " learning difficulties" as aspergers, ADHD etc are associated with cerebal palsy in as much that their presence in some cp cases may indicate a link. To my knowledge there is no such link put forward around genetic DYT1 dystonia.

[/highlight]

Stop, we need to talk, but not now as I need to go to bed...   aspergers is a learning disability, not a difficulty.ADHD is a seperate diagnosis and absolutely no link to Cerebral Palsey. When you say cp do you mean Cerebral Palsy or Child Protection?

PM me with your phone number or ring me on 01642 878141 for a chat, in working hours, tis a secure number.....

Cheers Vamps,
Weve had-are continuing to have to a degree!- a struggle to get him diagnosed with aspergers and over the past year or so Ive done a fair amount of research into it as well as having attended one of the "Early Bird " courses run by the National Autistic Society which was very good. To me, aspergers isnt about learning issues as much as social ones and obviously the scale of AS or Autism as a spectrum is vast. Our current concerns over his leg/foot are a seperate issue, being "physical" rather han "mental" though its cause is neurological. Will PM you later

PS , Lazy docker, thanks for your support too and help all goes well-and quickly!-for you !

Has he been tested for fragile X at all?  that has some major similarities to Aspergers, with some physical bits as well, and im sure foot problems was one of them from memory.

We are another family, with an autism diagnosis, and the help that has given, both in a label, and school / financial support has been immense.

[tigers_gonads]

at the end of the day paul, if the pain is doing your head in and grinding you down.
pay the money and try and move it along faster 

700 quid is nothing if its getting to you 

[tunnie]

are there any options for taking private healthcare from work? Do they offer any schemes?

[Lazydocker]

are there any options for taking private healthcare from work? Do they offer any schemes?

Yep... But too late now as it won't cover existing conditions.

I'll satisfy myself that I've saved about £8/week for the last 6 years by not buying into it

[Darth Loo-knee]

I have Voted for choice number 5, I think its the best thing for you Lazytinker 

[Richie London]

going by my own problem it seems to me there are too many unnecerssary consultants employed at hospitals hindering treatment for those who need it badly. i see one last may, he didnt even examine me but looked at an x ray of 2005 and told me i needed botox unjections in the spine. was referred to another consultant i see 2 weeks ago who sorted it all out within 5 mins. si why did i see this useless waste of space last yr causing me to lose about 30k in lost wages.

if i was you ld i would go to the complaints office at the hospital and state your case..it may help. i really hope you get it sorted quick as i can relate to what your feeling both mentally and physically. fingers crossed matey and hope you get sorted fast

rich

[Richie London]

and a massage really does help or a steaming hot towel on your back, but dont! ask for extras 

[Darth Loo-knee]

Can't believe he put that on his list. .  Wait till I let it slip in front of his Sweet Young Thing.   :-? 

[Lazydocker]

Thanks Daz.

Richie, like I said, I have no intentions of causing trouble at the hospital... There's a waiting list and I've been on it for 2 weeks

I've already made the decision to get the consultation and scan done privately. I'd made the decision before I even started this thread but was interested in other people's opinions

As a bit of a result, I had a call from the VP of the Old Boy's Association of the school I went to today saying that he had heard of my situation and the Association would meet the cost of the consultation (but not the scan) to try and speed things along for me. I was very active within the Association and have given a lot of my time (and money) over the last 5/6 years and they thought it was an appropriate sign of appreciation... That's a result

I've also found out today that I am eligible to apply for a grant from another charity to meet the cost of surgery if certain criteria are met so things are looking up

[Lazydocker]

and a massage really does help or a steaming hot towel on your back, but dont! ask for extras 

Funnily enough, I have a friend who keeps telling me to get a small Thai Lady to walk up and down my back!

[Kevin Wood]

and a massage really does help or a steaming hot towel on your back, but dont! ask for extras 

Funnily enough, I have a friend who keeps telling me to get a small Thai Lady to walk up and down my back!

Sounds like a job for the Countess.

[Mysteryman]

and a massage really does help or a steaming hot towel on your back, but dont! ask for extras 

Funnily enough, I have a friend who keeps telling me to get a small Thai Lady to walk up and down my back!

Mind she doesn't fall in when she gets to the bottom.

[Ray_Tupper]

I had a bad back many years ago and had to sleep on the front room door for 3 weeks.